Western Balkan nations: How well is your country doing on policy for secondary use of health data?
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Explore the secondary use of the health data
About this tool
An open and trustworthy health data ecosystem can help Europe
respond to the multiple urgent challenges facing society and the
economy today. Health data can be reused and shared,
de-identified, anonymised, and aggregated to generate new insights
and optimise population health, improve the patient journey,
create more efficient healthcare systems, and foster innovation.
Secondary use of health data enables a wide range of use cases and benefits across the entire healthcare system, including opportunities to optimise health
Secondary use of health data enables a wide range of use cases and benefits across the entire healthcare system, including opportunities to optimise health
service delivery, to reduce health inequalities through better
allocation of resources, and to be used to help enhance
personalised healthcare - for example, by comparing health
interventions for others with similar characteristics. Secondary
use of data is also a key element in innovation: secondary use of
health data can be used to extend research datasets to assess
whether new therapies would work for a broader population cohort.
Country rankings
- What is the quality of policy activity for this component?
- What progress is being made on implementation?
Country groupings
- Leaders: countries where the quality of policy is stronger and the stage of implementation is more advanced.
- Limited energy: countries where the quality of policy is stronger but the stage of implementation is less advanced.
- Limited vision: countries where the quality of policy is weaker but the stage of implementation is more advanced.
- Less prepared: countries where the quality of policy is weaker and the stage of implementation is less advanced.
European Union
Country Profile 1
An open and trustworthy health data ecosystem can help Europe
respond to the multiple urgent challenges facing society and the
economy today. Health data can be reused and shared,
de-identified, anonymised, and aggregated to generate new
insights and optimise population health, improve the patient
journey, create more efficient healthcare systems, and foster
innovation.
Overview 2
An open and trustworthy health data ecosystem can help Europe
respond to the multiple urgent challenges facing society and the
economy today. Health data can be reused and shared,
de-identified, anonymised, and aggregated to generate new
insights and optimise population health, improve the patient
journey, create more efficient healthcare systems, and foster
innovation.
Challenges: Top Policy Barriers 3
An open and trustworthy health data ecosystem can help Europe
respond to the multiple urgent challenges facing society and the
economy today. Health data can be reused and shared,
de-identified, anonymised, and aggregated to generate new
insights and optimise population health, improve the patient
journey, create more efficient healthcare systems, and foster
innovation.
Opportunities: Policy Momentum 4
There are recent systemic changes directed to value-based
healthcare implementation and centralization. The Ministry of
Health sees opportunities in data driven decision making
processes for healthcare.
Almost 100% of the population is covered by electronic healthcare records interoperable systems.
In 2019, the Medical Research Agency was created. This is a state agency responsible for development of scientific research in the field of medical and health sciences, with a purpose to build an innovative healthcare system.
The latest legislative change resulting from the Act on Medical Fund (entry into force = end of 2020) mandates entities to update disease registers to provide certain medical information to AOTMIT (Agency for Medical Technology Assessment and Tarification). AOTMIT will be obliged to prepare an analysis comparing the effectiveness of reimbursed innovative therapies with the alternative methods of treatment (on the basis of data provided by the public caregivers). This may raise the recognised importance of maintaining disease registers.
Almost 100% of the population is covered by electronic healthcare records interoperable systems.
In 2019, the Medical Research Agency was created. This is a state agency responsible for development of scientific research in the field of medical and health sciences, with a purpose to build an innovative healthcare system.
The latest legislative change resulting from the Act on Medical Fund (entry into force = end of 2020) mandates entities to update disease registers to provide certain medical information to AOTMIT (Agency for Medical Technology Assessment and Tarification). AOTMIT will be obliged to prepare an analysis comparing the effectiveness of reimbursed innovative therapies with the alternative methods of treatment (on the basis of data provided by the public caregivers). This may raise the recognised importance of maintaining disease registers.
European Union
Country Profile
An open and trustworthy health data ecosystem can help Europe
respond to the multiple urgent challenges facing society and the
economy today. Health data can be reused and shared,
de-identified, anonymised, and aggregated to generate new
insights and optimise population health, improve the patient
journey, create more efficient healthcare systems, and foster
innovation.
Overview
An open and trustworthy health data ecosystem can help Europe
respond to the multiple urgent challenges facing society and the
economy today. Health data can be reused and shared,
de-identified, anonymised, and aggregated to generate new
insights and optimise population health, improve the patient
journey, create more efficient healthcare systems, and foster
innovation.
Challenges: Top Policy Barriers
An open and trustworthy health data ecosystem can help Europe
respond to the multiple urgent challenges facing society and the
economy today. Health data can be reused and shared,
de-identified, anonymised, and aggregated to generate new
insights and optimise population health, improve the patient
journey, create more efficient healthcare systems, and foster
innovation.
Opportunities: Policy Momentum
There are recent systemic changes directed to value-based
healthcare implementation and centralization. The Ministry of
Health sees opportunities in data driven decision making
processes for healthcare.
Almost 100% of the population is covered by electronic healthcare records interoperable systems.
In 2019, the Medical Research Agency was created. This is a state agency responsible for development of scientific research in the field of medical and health sciences, with a purpose to build an innovative healthcare system.
The latest legislative change resulting from the Act on Medical Fund (entry into force = end of 2020) mandates entities to update disease registers to provide certain medical information to AOTMIT (Agency for Medical Technology Assessment and Tarification). AOTMIT will be obliged to prepare an analysis comparing the effectiveness of reimbursed innovative therapies with the alternative methods of treatment (on the basis of data provided by the public caregivers). This may raise the recognised importance of maintaining disease registers.
Almost 100% of the population is covered by electronic healthcare records interoperable systems.
In 2019, the Medical Research Agency was created. This is a state agency responsible for development of scientific research in the field of medical and health sciences, with a purpose to build an innovative healthcare system.
The latest legislative change resulting from the Act on Medical Fund (entry into force = end of 2020) mandates entities to update disease registers to provide certain medical information to AOTMIT (Agency for Medical Technology Assessment and Tarification). AOTMIT will be obliged to prepare an analysis comparing the effectiveness of reimbursed innovative therapies with the alternative methods of treatment (on the basis of data provided by the public caregivers). This may raise the recognised importance of maintaining disease registers.
Ecosystem Policy Environment
Secondary use of health daya policy is a national
priority
Overview
An open and trustworthy health data ecosystem can help
Europe respond to the multiple urgent challenges
facing society and the economy today. Health data can
be reused and shared, de-identified, anonymised, and
aggregated to generate new insights and optimise
population health, improve the patient journey, create
more efficient healthcare systems, and foster
innovation.
Quality of policy
Low
Medium
High
Speed of implementation
4 /4
➝ Read more
Ecosystem Policy Environment
Secondary use of health daya policy is a national
priority
Overview
An open and trustworthy health data ecosystem can help
Europe respond to the multiple urgent challenges
facing society and the economy today. Health data can
be reused and shared, de-identified, anonymised, and
aggregated to generate new insights and optimise
population health, improve the patient journey, create
more efficient healthcare systems, and foster
innovation.
Quality of policy
Low
Medium
High
Speed of implementation
4/4
➝ Read more
Category
Sectors and societies must invest in and protect the data
infrastructure they rely on. Open data is the foundation of this
emerging vital infrastructure.
Leaders
Where the quality of policy is stronger and the stage of
implementation is more advanced.
Limited Energy
Where the quality of policy is stronger but the stage of
implementation is less advanced.
Limited Vision
Where the quality of policy is weaker but the stage of
implementation is more advanced.
Less Prepared
Where the quality of policy is weaker and the stage of
implementation is less advanced.
